• SaveTheTuaHawk@lemmy.ca
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    17 天前

    It will be expensive forever. A similar therapy for SMA children (without surgery) costs US$2.1M. Novartis then gave away doses by lottery. for a few families, they got a dose, for everyone else, their child dies.

    How does Novartis CEO Vasant Narasimhan sleep at night? In a large mansion outside Boston.

    • WolfmanEightySix@piefed.social
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      16 天前

      Is that the cost, or what people are charged? Like in the USA people are charged an insane figure for insulin, but the product can be made for something like £17.

      • UnderpantsWeevil@lemmy.world
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        16 天前

        Is that the cost, or what people are charged?

        The latter.

        The therapy isn’t materially cheap, but every point along the line is profiteered on top of the baseline cost.